Duchenne Stories

These are the inspiring videos and stories of families living with Duchenne. In their own words, find out how they stay motivated to push through their challenges and live life to the fullest.

Meet Emmett—he is living with Duchenne and he is a paid ambassador.

Emmett held on his father's shoulders, both smiling

Personal Stories of Duchenne Heroes

Emmett and his family outside their home Emmett and his family outside their home

Meet Emmett and his family

Learn more about how Emmett’s family has navigated his Duchenne diagnosis and treatment.

Meet Emmett
Brantley doing an arts and crafts activity with his mother Brantley doing an arts and crafts activity with his mother

Meet Brantley and his family

Learn more about Brantley and how his family chooses to embrace change in the face of his diagnosis.

Meet Brantley
Nathan and his family outside their home Nathan and his family outside their home

Meet Nathan and his family

Learn more about Nathan’s family and his life as a teenager with Duchenne.

Meet Nathan
Colin sitting outside on a sunny day Colin sitting outside on a sunny day

Meet Colin and his family

Learn more about how Colin maintains his independence and how he and his parents have traveled all over the world.

Meet Colin