Duchenne-Opedia
Find a glossary of helpful terms that are commonly used when discussing Duchenne treatment and care management.
We Speak Duchenne is here to help you better understand Duchenne muscular dystrophy and connect you to community resources to help you make informed care decisions.
Meet Emmett—he is living with Duchenne and he is a paid ambassador.
Finding the right care starts with having the right information. Explore our Duchenne-opedia, a glossary of terms that are commonly used when discussing Duchenne, find answers to common questions from Duchenne caregivers, and learn more about patient advocacy groups that can help with navigating the Duchenne journey.
Find a glossary of helpful terms that are commonly used when discussing Duchenne treatment and care management.
Discover answers to commonly asked questions from Duchenne caregivers.
Learn about our patient advocacy group partners who are here to help guide and support your family through the Duchenne journey.
Download the dystrophin brochure, FAQs, and Doctor Discussion Guide for information and tips that can help you and your family through the Duchenne journey.
Sign up to receive helpful Duchenne resources.
Meet Tripp—he is living with Duchenne and he is a paid ambassador.