If you or someone you care for is living with Duchenne muscular dystrophy, know that you’re not alone. There are many patient advocacy groups that are dedicated to supporting families living with Duchenne muscular dystrophy.
Meet Diego—he is living with Duchenne and he is a paid ambassador.
Learn more about our patient advocacy group partners who are here to help guide and support your family through the Duchenne journey.
The Akari Foundation educates families on rare diseases and DMD, advocates for the rights and needs of the Hispanic community within the United States, helps with resources, translations, and interpretations, and are that connection and bond between families and other organizations.
Cure Duchenne is dedicated to finding and funding a cure for Duchenne through an innovative venture philanthropy model that funds groundbreaking research, early diagnosis, and community education.
The Jett Foundation partners with individuals and families through empowering educational programming, transformational summer camp experiences, financial support for emergencies and accessibility equipment, and by accelerating development of life changing treatments.
Little Hercules Foundation serves the rare disease community through access advocacy and policy to ensure that all rare disease patients get access to medically necessary treatments and care.
The Muscular Dystrophy Association is committed to transforming the lives of people affected by muscular dystrophy.
The mission of Parent Project Muscular Dystrophy is to accelerate research, impact policy, demand optimal care for every family, and strive to ensure access to approved therapies.
Team Joseph helps fund cutting-edge research to find a treatment or cure for Duchenne muscular dystrophy and improves the lives of patients and families through advocacy, mentoring, and direct support through the Duchenne Family Assistance Program.
Learn more about our patient foundation partners who are working to make treatment more affordable.
Accessia Health provides the financial safety net, products, services, and assistance to patients and families living with rare and chronic diseases and disabilities.
The Assistance Fund helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copays, coinsurance, deductibles, and other health-related expenses through a dedicated fund for patients with Duchenne.
Team Joseph Duchenne Family Assistance Program provides assistance to families for expenses related to the care of a child with Duchenne and offers help and support to families who need access to equipment, clinical care, and social services.
Good Days provides resources to help make treatments affordable for patients with specific, life-altering conditions.
HealthWell offers a financial lifeline to underinsured Americans who require critical medical treatments that they cannot fully afford by assisting with their cost-sharing obligations.
NORD provides assistance to patients and families struggling to obtain lifesaving or life-sustaining treatment and care, including medication, financial assistance with insurance premiums and copays, diagnostic testing, caregiver respite grants, and travel assistance to treatment sites and clinical trials; NORD offers a dedicated fund for patients with Duchenne.
Patient Advocate Foundation provides direct financial assistance with copayments, coinsurance, and deductibles required by the patient’s insurer for medications prescribed to treat and manage their disease.
The PAN Foundation helps underinsured patients with life-threatening, chronic, and rare diseases get the medications and treatments they need by assisting with out-of-pocket costs.
